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Why it’s good to share your data

by  /  18 May 2012

Given shrinking research budgets, data-sharing is likely to become even more important. In Insel’s words, presented by Daniels at the conference, “Share data to protect the future of your funding and funding for autism research as a whole.”

After growing steadily for most of the past decade, funding for autism research has plateaued, a trend Insel pointed to at IMFAR last year.

However, autism funding is growing faster than that for other neurological disorders, such as multiple sclerosis, as well as for neuroscience in general.

In 2010, a combination of 18 public (82 percent) and private (18 percent) organizations gave out a total of $408 million. The Simons Foundation, SFARI.org’s parent organization, is the second largest funder after the NIH.

Research on lifespan issues, including functioning of adults with autism and treatments tailored to this group, get the smallest chunk of funding, less than two percent. This issue used to be lumped together with research into autism services, but it is now its own category because it is considered so important, said Daniels. Services garner 16 percent of overall funding.

For more reports from the 2012 International Meeting for Autism Research, please click here.