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Spectrum: Autism Research News

Protecting your genes

by  /  25 April 2008
THIS ARTICLE IS MORE THAN FIVE YEARS OLD

This article is more than five years old. Autism research — and science in general — is constantly evolving, so older articles may contain information or theories that have been reevaluated since their original publication date.

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You might soon be able to get your hands on a copy of your entire genome for $1,000. But until yesterday, there was no law in sight to prevent others from using your DNA against you.

Yesterday, the Senate voted 95-0 to approve a remarkable bill called the Genetic Information Nondiscrimination Act, which makes it unlawful for employers and insurance companies to demand genetic information or to make hiring, firing or promotion decisions based on someoneʼs genes.

The Senate has approved genetic nondiscrimination bills with unanimous votes twice before, in 2003 and 2005, but the House didnʼt follow through. This time, however, the House is expected to approve it quickly, and President Bush has promised to sign it.

There are more than 1,100 genetic tests available for diseases ranging from breast and colon cancer to Alzheimerʼs disease. Some day, tests may also be available for autism.

But until now, many people declined to be tested for disease genes for fear of discrimination. For example, nearly a third of women approached by the National Institutes of Health declined to be tested for breast cancer risk, citing insurance concerns.

With the new law, only patients and their doctors would be allowed to access the results, so people can make decisions based on facts, and not on fear.

“It’s the first civil rights bill of the new century of life sciences,” Senator Edward Kennedy said. “We made sure today that our laws reflect the [scientific] advances we are making.”


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