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Spectrum: Autism Research News

U.S. government shutdown threatens research grants, autism care

by  /  25 January 2019
Scientists and others protest over government shutdown
Science of unrest: The government shutdown has stalled some research grants and pay for postdocs.

The Mercury News / Getty Images
THIS ARTICLE IS MORE THAN FIVE YEARS OLD

This article is more than five years old. Autism research — and science in general — is constantly evolving, so older articles may contain information or theories that have been reevaluated since their original publication date.

There was nothing in the mail, nor even an email ping to alert Kristin Hook that she would no longer receive a paycheck.

Hook is not a government employee; she’s a postdoctoral fellow at the University of Maryland, College Park. But her work on sperm evolution is funded by the National Science Foundation (NSF). So when her check didn’t come through in December, she went to the institute’s website and realized the worst: She would not get paid as long as the U.S. federal government remained shut down.

“It is anxiety-inducing because it’s unclear how long this will go on,” she says.

Hook’s story is one of dozens that illustrate the far-reaching effects of the shutdown. As the stalemate between President Trump and the Senate extends into its sixth week, the NSF and the National Institutes of Health (NIH) are postponing grant decisions. Hundreds of government employees at the Environmental Protection Agency — whose workers monitor levels of air pollution, among other things — are furloughed. And the Food and Drug Administration is rerouting finances from other divisions so it can continue drug approvals.

The shutdown is also affecting the health of autistic children whose parents work for the federal government. Some of these parents are posting social media calls for help with childcare and other bills. One Department of Justice employee and his wife have created a GoFundMe campaign to cover food and medical costs for their family, including their 10-year-old son with autism.

Others are taking more extreme measures: Jonathan Barnett is a member of a union of air-traffic controllers that has filed a lawsuit against President Trump because the workers have had to go without pay. Barnett, who hasn’t been paid since 22 December, is the sole provider for his family — and one of his three children has autism, says his lawyer Molly Elkin. “His child requires several therapies a week,” Elkin says, and some of those therapies aren’t covered by insurance. “He’s been paying out of pocket, and now he’s unable to do so.”

Ripple effect:

The budget stalemate has largely spared agencies relevant to autism research. For instance, the shutdown doesn’t directly affect the NIH or the Centers for Disease Control and Prevention, because their budgets were approved through the end of the fiscal year.

But the shutdown is affecting the NIH, regardless. The NIH is required to publish notice of upcoming grant reviews in the Federal Register. The Federal Register is shuttered, however, and is stalling grant reviews, according to Science magazine.

It’s unclear exactly how many review meetings are postponed, but “relatively few” have been rescheduled, says NIH spokesperson Emma Wojtowicz. “We are informing scientific review officers and reviewers that they should assume their meetings are on unless notified otherwise,” she says.

Researchers who submitted grant proposals to the NSF months ago are also left in the lurch. No grant proposals have been reviewed or approved at that agency since the shutdown began on 21 December, according to a spokesperson.

With no resolution in sight, Hook is counting down the savings in her meager account. But like many others in her situation, she says, she will continue to show up for work. “The scientific enterprise doesn’t stop.”